New Delhi: Chief Justice CJI Chandrachudh of India is in the news these days. Let me tell you that a few days ago Chandrachudh has talked about the innate and rare disease of his two daughters. CJI said that his daughter is a victim of a disorder called Nemaline Myopathy. This is such a disorder. Which has no cure. So let’s know what this disease is and what are its symptoms.
Nemaline Myopathy is a congenital disorder. It causes problems to muscles. Due to this disease, muscle protein starts to end. Nemaline Myopathy affects the muscles badly. Due to which it becomes difficult to move the patient. This disease especially damages the muscles around the neck and jaw. Due to which the patient has difficulty in breathing and swallowing, even eating some food and speaking. Let me tell you that there is no cure for this disease. This disease is rare.
These disorders are congenital. Children grow up. This disease develops. At the same time, when children are victims of this disease, then their muscles begin to weaken. From which they have trouble walking. Children also feel pain while speaking. Due to the weak muscle, the shape of the child’s face also changes. Talking about the treatment of this disease, no treatment is possible. But with the help of physiotherapy, its symptoms can be controlled to some extent. At the same time, the patient does not even breathe when the situation worsened. In such a situation, the help of ventilation is taken. Patients are helped through speech therapy. Also read: Mahendra Singh Dhoni in the election field! EC itself reached his frame
