Woman paralysed after mistaking rare condition for back ache
Reach Daily Express April 23, 2026 10:40 PM

A fit and healthy young woman has told how her "back ache" turned out to be a rare spinal stroke which left her paralysed from the chest down. Lucy Dunford was 19 when she started suffering from "stabbing pains" between her shoulder blades in December 2024.

She brushed them off as normal bodily aches, but two weeks later she was rushed to hospital after the pain grew "unbearable" before she developed pins and needles in her hands and feet and became too weak to walk. Now 21, Lucy is currently wheelchair bound after suffering the stroke, which usually affects people between 50 and 70 years old, according to The Royal Buckinghamshire Hospital.

Lucy is paralysed from the neck down, and is only able to move her arms. She also suffers terrible nerve pain and severe muscle spasms which are sometimes so bad she can't control her legs.

She is now crowdfunding to raise money for specialist physiotherapy treatment to help build her muscles and stop her "uncontrollable spasms".

Lucy, from Wakefield, West Yorkshire, said: "Words can't describe how life has changed after a spinal cord injury. Everything is difficult, there is no such thing as a simple task anymore."

She said that as soon as she wakes up she experiences spasms and it takes a long time to sit on the end of the bed before having to use all her strength to get into her chair.

The youngster said: "My spasms in my body so hard to live with, not only can I not control my legs and core but they move involuntarily which make being in my chair unsafe as they throw me around.

"As well, nerve pain is really severe some days where I have to cancel plans and stay in bed to endure the pain.

"The best way I can describe the pain is like if all the blood in my veins was replaced with larva - my whole body from neck down was on fire."

She said everything she used to love about her life has been snatched away. Lucy said she can't have a day off or have a "chill day" in bed because she is at risk of pressure sores.

Lucy said even going out involves having to plan carefully and the feeling of being an inconvenience to friends or strangers is a struggle.

A spinal stroke is a rare condition and is caused by a disruption in the blood supply to the spinal cord, according to the Brain & Spine Foundation.

Before the incident on December 16, 2024, Lucy said she was fit and had her whole future ahead of her. She had just started studying FDA leadership and management at the University of Hull.

Lucy said: "Before my stroke I was in the gym five times per week and really prioritised eating clean and drinking water and getting as many steps in per day. I was also working two jobs at the time, as a barmaid and at a hotel."

Lucy was relaxing at home when the back pain she had been experiencing worsened.

The student said when the pain didn't subside after taking paracetamol, she rang 111 who told her to go to the hospital as soon as possible.

She said: "My hands and feet went numb and when I tried to stand up I couldn't support my own weight. I had to be carried to the car where I couldn't do my own seatbelt I was so weak."

Her partner - who doesn't want to be named - drove her to Pinderfields Hospital in Wakefield. Upon arrival she had to wait in A&E for an hour before being taken to a triage room - but at this point she has revealed she lost all function in her left leg.

Lucy said she was then taken to the major injury ward where they performed blood test, ECGs, and CT scans of my brain and lungs to find out what was going on.

The next morning Lucy said she woke up paralysed from her chest down which she described as "terrifying".

She was transferred to Dewsbury Hospital for a full body MRI before returning to Pinderfields to have a lumbar puncture so they could collect spinal fluid and tests for transverse myelitis.

Transverse myelitis is a rare neurological condition which is caused by inflammation of the spinal cord - it damages the nerves and can leave permanent scars or lesions, according to the NHS.

She said: "After three weeks, it was confirmed I didn't have this or any virus and throughout my stay I had many tests which all indicated I was perfectly healthy.

"They suggested a spinal stroke around the three weeks mark of been in hospital, however I wasn't fully diagnosed until four months of being in the hospital on April 1."

She was discharged the same month and has since been engaging in physiotherapy to help regain some independence.

The student has told doctors don't know what caused stroke, labelling it as idiopathic - this means they don't know what caused it, according to the NHS. She currently lives with her partner whom she relies on for finances and transport.

Lucy has also courageously continued at university. Though she admitted that coming to terms with her new life has been "difficult".

She paid £19,122 for stem cell treatment out of her own pocket last year and is currently raising money to pay for an intensive 10-week physiotherapy course.

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